10 Tips to Having an Illness Support Group that Isn’t Depressing
If you have a chronic illness or live with chronic pain, it’s highly likely that you have attended a support group at least one time since your diagnosis. Did the experience go something like this?
You felt awful the entire day but you decided to get in the car and go to the support group anyway. You thought it would be good for you. It took forever to find the building at the hospital and then you ended up parking what seemed like a mile from the suite number. You found a chair that smelled like old sweat and smoke and hoped somehow you would find some encouragement. But an hour later you’re ready to make dash for the door. Everyone seems to be so depressed! And too many people want to either sell you a juicer that is sure to cure your problems, or tell you about every surgery they’ve had since 1977.
Aren’t support groups supposed to be a valuable coping tool?
Yes! David Spiegel, MD, has proven in his studies that support groups improve the quality of life for the participants. While recent studies have shown that the patient may not live longer due to the support groups themselves [See the Sept. issue of CANCER, the journal of the American Cancer Society,] there is no denying that having your feelings validated by those who understand will help you sleep better at night. So here are some icebreaker games for small groups to perk up the people!
Whether you are looking for leadership program ideas for your small group, or you’re just thinking about attending one, you may have cause for concern about how fast a group can go from being a friendly, honest place to a time of complaints and even bickering. Would you like some fresh icebreaker games for small groups to perk people up?
Here are 10 ideas to help create some humor and joy in your support group. You can evade some of those bitter moments that can so easily come out in conversation about illness. Some simple planning can make you feel enthused about your next get together. These ideas will work for any groups, from a Rhode Island support group for CFS to a diabetes support group for those in Marion County, Florida. And they a great tool to have when you are creating a proposal for starting up a support group.
1. Cut out some smiley faces and sad faces and glue them back-to-back to a stick or plastic knife. As you go around the circle sharing have each person make sure they are able to hold up both sides of the faces when they are talking about their illness. For example, Mary could hold up the sad face and say, “Preparing for a joint replacement and all the therapy involved afterwards is a bit scary.” (Then flip it over) “But the upside is my family and friends are already volunteering to come over and help me out around the house.”
2. 2. Rethink your definition of what counts as indoor games for small groups. For example, ask everyone to bring an item to contribute to a JOY box and then pass it around during the meeting and let people choose everything to take home. The range of objects can be anything a silicone bracelet, a favorite poem, a funny DVD, an encouraging note or even a joke book. Have everyone return the item during the next meeting and occasionally have people bring fresh items.
3. Be goofy together with ice breakers for small groups. Make up a fun, corny theme song to start each meeting, or pick a tune everyone knows and make up new lyrics. Check out comedian Anita Renfroe’s website for some terrific examples that will leave you in stitches.
4. Bring some corny things to use during your meetings. Avoid making anyone feel pressured to use them. (If you force someone to wear a clown nose she may never come back) Have them available, however, and encourage goofiness before getting down to the real reasons you are there. Oriental Trading supply is the source of thousands of funny items guaranteed to spur a giggle.
5. Though it can be a challenge, don’t let your group tune into a platform for any member to talk continuously about his or her disease, the treatments, alternative treatments and even complaints. If someone tends to dominate the conversation, let your group know you are implementing the use of a timer to make sure everyone has equal opportunity to share. Set whatever guidelines you wish, for instance, you could allow people to vent for sixty seconds on any topic. Or they could share about an alternative treatment they’ve found useful, but when the timer rings, time is up!
6. Ask everyone to bring an item to include in a gift basket encouragement for someone else. It may be someone who cannot attend the group someone having surgery, or a friend of someone recently diagnosed. Put your ideas together about things people would like. Don’t forget personal notes or even sticky notes on a small gift can mean the most.
7. Have a fun night out. You can act your age and go to a nice sit-down restaurant or head over to Chuck E. Cheese for some pin ball. It can definitely be a successful icebreaker for small groups because people who haven’t opened up much in the group may feel relieved to have this environment to get to know others.
8. Provide handouts or items that encourage people to thrive with illness. For example, National Invisible Chronic Illness Awareness Week always has fun items like bumper stickers, static clings, stickers, pins, mugs, etc. with the different themes like, “My illness is invisible but my hope shines through!”
9. Listen to a recording of potential guest speakers before inviting them to speak if possible. Some can be quite depressing. Let guest speakers know that you’d like their presentation to be on the positive side despite the topic of illness. Tell them they are welcome to tell a joke, pass out props, or whatever will keep people listening and also encouraged.
10. Focus on things that your group can actually do that will change things, since they may feel so unable to control their illness. If you can’t physically participate in the local walk for charity, could you work at a table handing out snacks or doing registration? Find events your group can participate in to feel like they are doing more than just complaining about their predicament. Take advantage of the energy that teens with chronic illness often have to motivate support groups to get involved in outside projects.
Illness can be one of the most isolating experiences people have, and support groups provide a sense of belonging in the midst of this. The levels of relationship that form in the group, however, are significantly influenced by how uplifting the leader makes the group environment. None of us want to leave a meeting feeling worse than when we came, but rather refreshed and motivated to live the best life possible. With just a few changes, your support group can go from being a simple meeting, to becoming a lifeline for those involved.